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Useful Links | Biliary Atresia Awareness and Research

Useful Links

Resources for Families

The links below have been provided for your convenience to help in Research or Support.


Canadian Liver Foundation
The Canadian Liver Foundation was the first organization in the world devoted to providing support for research and education into the causes, diagnoses, prevention and treatment of all liver disease.


BC Childrens Hospital
BC Children’s Hospital is the province’s only full-service, pediatric acute care hospital serving the one million children living in BC and the Yukon. All children who are seriously ill or injured are referred to Children’s Hospital and are either treated at the hospital facility in Vancouver or, with consultation from Children’s specialists, in their home community.


Child and Family Research Institute (CFRI)
The largest research institute of its kind in Western Canada. Based at BC Children’s Hospital, CFRI deals with a wide range of children’s and women’s health concerns.


Canadian Biliary Atresia Registry
A collaboration between the Canadian Pediatric Hepatology Research Group (CPHRG) and the Canadian Association of Pediatric Surgeons (CAPS), the two well-established networks in Canada involved with the care of children with biliary atresia.


Children with Intestinal and Liver Disorders (CH.I.L.D)
A Canadian federally registered organisation, established in 1995 to fund research for children who are stricken with Crohn’s Disease, Ulcerative Colitis, and liver disorders.


CH.I.L.D Spring Newsletter 2013
CH.I.L.D Newsletter 2013 featuring Natalie and Canadian Biliary Atresia Registry


Children’s Liver Disease Foundation UK (CLDF) 
Formed in 1980, Children’s Liver Disease Foundation is a UK charity dedicated to taking action against the effects of all liver diseases of childhood.


American Liver Foundation (ALF) 
Facilitates, advocates and promotes education, support and research for the prevention, treatment and cure of liver disease.


Australia & New Zealand Liver Foundation
Established to promote research into diseases of the liver and bile duct, fostering collaboration amongst research institutions, universities and hospitals to share information and find solutions to devastating diseases that afflict so many in Australia and internationally.


David Foster Foundation
The David Foster Foundation is a non-profit charitable organization dedicated to providing financial support for non-medical expenses to Canadian families with children in need of life-saving organ transplants.


Canadian Transplant Society
Founded in 2009, the Canadian Transplant Society is dedicated to furthering the goals of transplant medicine across Canada.


Canadian Transplant Association
Founded in 1987 to enrich and celebrate life while promoting organ and tissue donation. Members include transplant recipients, candidates on transplant wait lists, donor families, living donors, families, friends and health care professionals.


If you would like to add a Link here that may be of some help, please Email – thank you!