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Launch of the “Biliary Atresia Home screening program” | Biliary Atresia Awareness and Research

Launch of the “Biliary Atresia Home screening program”

A win for BAAR
July 7, 2014
Looking back, Biliary Atresia.
August 12, 2014

 

Launch of the “Biliary Atresia Home screening program”

Early diagnosis

For quite some time my Biliary Atresia Specialist, Dr. Rick Schreiber has been working with the Perinatal Services BC on releasing a new program called the “Biliary Atresia Home Screening Program”. This program is the first of its kind in Canada and is aimed at new parents to check their newborn’s stool colour in order to detect the early signs of Biliary Atresia, a rare, life-long and potentially fatal childhood liver disease. Detecting the early signs of Biliary Atresia is crucial as early diagnosis is essential for both short and long term outcome. All parents in British Columbia will be given a stool colour chart shortly after giving birth, before discharge from the hospital. If they give birth at home they will be given the stool colour card by their midwife. For the news release of this program Dr. Rick Schreiber asked me to give a quote.

Here is the link to the article where I provided the quote. 

Early diagnosis is crucial as infants diagnosed with Biliary Atresia need the Kasai Operation in order to save their life and hopefully reduce the chances of them needing a Liver Transplant. However the Kasai Operation need to be done within the first two months of life as this has an 80% success rate. If the operation is done at 3 months of age success rate drops to a frightening 20%. Imagine you new born baby having a 20% chance. No parent should ever have to go through that but unfortunately due to lack of awareness of the symptoms of Biliary Atresia it happens time and time again. I am certain that this new program will not only help diagnosis Biliary Atresia earlier, but it will save lives. To all the parents out there, please look at the links below as your newborns stool colour is far more important than what most people realize.

Link to the Perinatal website where you can learn more about this program and Biliary Atresia.

Link the stool colour chart.

            The symptoms of Biliary Atresia. Symptons of BA